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Our Next Meeting is Tuesday, May 8th

The meeting will take place at 7:00 PM in the Rosalie Rendu Room, in the cafeteria. Give yourself a bit of extra time as O’Connor is now locking the doors near the cafeteria at 6:00 pm. The front doors of O’Connor are still open past 6:00 pm. Persons who have recently experienced surgery or are about to undergo surgery are encouraged to attend, as well as those who support ostomates.

Schedule of Future Meeting

May 8, June 12, July 10, August 14, September 11, October 9, November 13 & December 11.

Map & directions to meetings

Stanford WOC Team With Ostomy Bears

This is a picture of some “Ostomy Bears” the group donated for kids at Stanford. Note that each bear has a Stoma. With our donations they were able to buy 20 Ostomy bears to comfort young new ostomates at Lucille Packard Children’s Hospital Stanford.

What happened at Our April 10th Meeting 

The April meeting was called by to order at 7:00 pm in the Rosalie Rendu Room by Dave. 29 people were in attendance for the meeting.

Jennifer introduced Ms. Bamboo Ilana, L.Ac, Licensed Acupuncturist, Movement Specialist, bamboo.ilana53@gmail.com, www.fasciatouch.com, 408-655-5767. Bamboo consistently helps clients who have not found relief with other treatments. Her clients often experience significant relief and increased mobility after a single session and have continued improvement with additional treatment. If you’ve tried conventional methods and have not found relief, it is time to call Bamboo. There is no reason to live in pain! Bamboo is a licensed Acupuncturist and a Movement Specialist. She combines several modalities to help her clients get out of pain and move with greater freedom and ease.

Bamboo spoke about how scars can affect the entire body. Scars are interconnected throughout the body and can affect quality of life issues. She told us about Myofascial release and how the pain related is simply the tip of the iceberg. After speaking to the group, Bamboo then demonstrated various techniques in dealing with scars and what can be done. She provides Acupuncture~Ch Med, Myofascial Release, Craniosacral Therapy, Self-Myofascial Exercise, Scientific Hand Analysis. Bamboo looks forward to supporting you as you fully step back into your vibrant life.

We had several people join us this evening. We welcomed Laura, Shannon, Arthur and Nancy to our meeting. One of our members, who had moved away, came to visit us and we welcomed Sastry who is here on vacation. Very good to see him.

Also joining us this evening was Helynn Rueda, CWCMS, Senior Territory Representative from Shield Health Care. If you have questions about medical supplies, please contact her at 510-459-7896 or hrueda@shieldhealthcare.com. You can also look at www.shieldhealthcare.com for information. Helynn told us she is going to try to arrange for Laura Cox, Ostomy Lifestyle Specialist from Shield to visit with us later this year. Laura was with us several years ago and as an Ostomate since 2011, offers a fresh and candid approach on living with an ostomy. Once we have a date, the word will go out.

Jennifer then led a discussion group, as questions came up from our members. Linda spent the afternoon baking and she provided baked treats for the group and we thank her for her support.

If you can, look at the Silicon Valley Ostomy Support Group, www.SVOSG.org web site. There is a picture of a portion of the Stanford WOC Team with some of the Ostomy Bears that our group bought. These bears will be given to children who have ostomies.

Finally, I want to Thank Rev. Paul Masquelier, Jr. for his kind donation and continuing help in maintaining the Silicon Valley Ostomy Support Group Web site. Without his help, this simply could not happen.

Our next meeting is slated for May 8. Our June 12th meeting, we will have Toni Daniels from Coloplast joining us to talk about what is new from Coloplast.

Our next meeting is May 8, 2018 in the Rosalie Rendu Room, starting at 7:00 pm. The meeting was adjourned at 8:30 pm.

Respectfully submitted,
Dave B.

What happened at Our Mar 13 Meeting 

March 13, 2018

The March meeting was called by to order at 7:03 pm in the Rosalie Rendu Room by Jennifer. 27 people were in attendance for the meeting.

This evening we welcomed Ms. Carolyn Trapp, Territory Manager, Ostomy Care, San Francisco Bay Area for Convatec. Carolyn talked to us about Convatec, not only the products they have, but a program they are very proud of. Me +, this is the Convatec Services & Care program. This program is designed to assist the new Ostomate through the entire journey, providing the support, insights and the products you need. This is a comprehensive kit and personal support customized to help you get comfortable with your ostomy in the weeks ahead. This starter kit comes in a discreet package that includes pouches and adhesives, plus detailed instructions on how to change your pouch. It also gives you the tools and resources to help you manage your stoma, without changing the way you want to live. But most of all, it gives direct access to compassionate, highly trained specialists when you have questions or need advice. Call at CIC 1-800-422-8811 (M-F, 8:30 AM – 7:00 PM EST or email CIC@convatec.com .

Outstanding handbook produced by Vancouver Ostomy Support group

Carolyn talked about a program still being developed, called Great Comeback that Convatec is working on. This is an additional Ostomy Support Program. Great Comebacks connects you with people who have been right where you are now. Visit www.convatec.com/ostomy to find out more. We asked Carolyn if we could have a link on our Web Site to the new Convatec “Road to Recovery program.” Once Carolyn clears this with Convatec, we will add it.

Ostomysecrets helps you looks great and feel confident – so you can go out and do the things you enjoy. Call Ostomy Secrets at 1-877-613-6246. Your first order will get you 50% off with CODE SECRET50.

Carolyn stayed throughout our meeting and we greatly appreciate that. She handed out various Ostomy items, suggesting new techniques as well as learning a couple of things from our group.

After Carolyn’s presentation, we tried something different as we had a lot of people. We broke into three groups, Colostomy, Ileostomy and Urostomy. Each group exchanged ideas and offered suggestions to address the trials and tribulations of having an ostomy.

We welcomed Golzar, Jim and Dianna to our group. We look forward to seeing you.

Dave brought in a tool, called Speedy Sharp. This Carbide Edge tool is great for sharpening scissors, kitchen knives, or virtually anything that needs to be sharpened. Take a look at www.speedysharpinc.com for more information. They were available for $8.00 each. Normally $11.95.

Cindy Musumeci, who has graciously offered to be a collection point for excess Ostomy Supplies. Her church has offered to assist those in need of supplies and Cindy is the point person. She can be reached at 408-828-2873. Please do not call late!

Our April 10th meeting will be interesting.

Home

Stretching From The Inside Out
Do you have any of these chronic problems?
Back Pain
Neck Pain
Shoulder Pain
Foot Pain (Plantar Fasciitis, etc.)
Arm or Hand Pain (Carpal Tunnel, etc.)
Leg, Knee or Hip Pain
Have you been considering surgery and feel uncertain about taking that drastic step?
Did your pain seem to come from nowhere? Do you feel your pain has been ignored or dismissed? Do you long to get your life back and do the activities you love?
Bamboo consistently helps clients who have not found relief with other treatments. Her clients often experience significant relief and increased mobility after a single session and have continued improvement with additional treatment. If you’ve tried conventional methods and have not found relief, it is time to call Bamboo. There is no reason to live in pain!
Bamboo is a licensed Acupuncturist and a Movement Specialist. She combines several modalities to help her clients get out of pain and move with greater freedom and ease. She’ll teach you tools and techniques to reduce pain and get your head and mind pointed in the right direction for healing you and the pain.
When you have persistent pain that laughs at your regular exercises, we need to look at the history of trauma, physical injuries, surgeries, scar tissue, and the emotional issues that affect all long-standing pain conditions.
Bamboo’s goal is to assist you in reconnecting the joy of physical movement and all of your activities.
She’ll be delighted to talk with you.
I look forward to supporting you as you fully step back into your vibrant life.

Bamboo Ilana, L.Ac., MS, Mvt Spec., Rev.

After the General Meeting, the officers met to discuss several issues.

The need to have a phone. A decision was made to buy a cheap “Flip Phone” that will allow Crystal to get messages and get back to someone with answers. The phone number will be posted on our Web Site and the Phoenix Magazine. Jennifer will find/buy the phone, Annette will make the update to Phoenix.
Crystal was contacted by Stanford Children’s Hospital to fund Awesome Ostomies. These small teddy bears have a pink ostomy and at a cost of $20.00 each, the Silicon Valley Ostomy Support Group donated $280.00. Our members donated $120.00. Collectively we donated 20 bears to Awesome Ostomies for kids.

Our next meeting is April 10, 2018 in the Rosalie Rendu Room, starting at 7:00 pm.

The meeting was adjourned at 8:30 pm.

Respectfully submitted,

Dave B.

What happened at Our Feb 13 Meeting 

The February meeting was called by to order at 7:00 pm in the Rosalie Rendu Room by Crystal. 17 people were in attendance for the meeting.  We went around the room introducing ourselves and giving a brief history of what we were faced with.

This evening, John Roberts from Hollister joined us. John provided a history of Hollister, which has been around 95 years. Hollister started out as a printing company and because of people having Ostomy issues, they began to develop Ostomy products. Currently  Hollister has 700 products and is an employee owned company.

New Products – “CeraPlus Barriers. This Skin Barrier has Remois Technology. This barrier is infused with ceramide, the skin’s naturally occurring protection against dryness.”

Hollister information: www.hollister.com, 1-800-323-4060 or 1-888-808-7456. John can be reached at John.Roberts@Hollister.com. John passed around numerous products, answered questions and passed out forms to anyone that had questions or wanted to try a new product. We invited John to join us for our October “Bag Change Extravaganza”.

Eddie and his wife Cindy were with us. Eddie had Colostomy surgery in the last month and is looking good! We passed around the hat to collect money for Linda as she is now working hard in the kitchen to provide us goodies to snack on during the meeting.

Since this was our second meeting of 2018, we began the collection of dues for the Silicon Valley Ostomy Support Group. The annual dues are $20.00. This amount covers insurance, phone and other miscellaneous items that come up during the year. As this is our  group, your help is greatly appreciated. If it is a help, you can mail your check to our Treasurer, Annette Kaiser, address is 183 Shelley Ave., Campbell, California 95008. Thank you for your support.

The Anesthesia and Informatics Media Lab at Stanford is testing a new device for ostomy patients- the Ostom-i™ Alert Sensor. For more information you can visit https://aim.stanford.edu/ostomy/ or email Sylvie Dobrota.

Cindy has a great plan. Her church group has undertaken helping people that need Ostomy supplies. Cindy will pick up excess  supplies and distribute them to people in our area that have a critical need. So, saying that, any excess supplies you might have, we  now have a way to get them to local people in need.

If you have any suggestions for a speaker at one of our meetings, please let Jennifer or Crystal know and they can be scheduled.  Remember, the success of our meetings is the result of all of our efforts, not just one person! Please help!

The March meeting, we plan to have Carolyn Trapp from Convatec joining us. She is hoping to bring Cindy with her, a WOCN Nurse.

Our next meeting is March 13, 2018 in the Rosalie Rendu Room, starting at 7:00 pm. The meeting was adjourned at 8:30 pm.

Respectfully submitted, Dave B.

What happened at Our January 9 Meeting

The January meeting was called to order at 7:04 pm in the Rosalie Rendu Room by Crystal. 14 people were in attendance for the meeting. We went around the room introducing ourselves and giving a brief history of what we were faced with.

We welcomed two new members to our group. Eddie, accompanied by his wife Cindy and Jeremy. Eddie is scheduled for a Colostomy January 12 and Jeremy has an Ileostomy, procedure was done in 2017.

We welcomed Ellen to our meeting. Ellen’s husband Paul was a member of our group and passed away last year. Ellen is a Reiki Master and came to our meeting to share her insights to what Reiki can do for someone with an Ostomy. She led us in an Energy Exercise, Live Beam meditation, that lasted about 5 to 6 minutes. She explained to us the value of Reiki and how it can benefit each one of us. She explained how she worked with her husband Paul to improve some of what he was going through. After the group
exercise, Ellen conducted short sessions with several of our members as the meeting went on.

If you are interested in exploring what Reiki offers, please contact Ellen at Ellen@LifeInsights.net for further information. She also told us about a program called Leap. Leap provides participants with a support system that elevates and stabilizes their energy flow in the face of all of life’s circumstances. For more information, contact Susan at susanayers@aol.com.

Since this was our first meeting of 2018, we began the collection of dues for the Silicon Valley Ostomy Support Group. The annual dues are $20.00. This amount covers insurance, phone and other
miscellaneous items that come up during the year. As this is our group, your help is greatly appreciated. If it is a help, you can mail your check to our Treasurer, Annette Kaiser, address is 183 Shelley Ave., Campbell, California 95008. Thank you for your support.

The Anesthesia and Informatics Media Lab at Stanford is testing a new device for ostomy patients- the Ostom-i™ Alert Sensor. For more information you can visit https://aim.stanford.edu/ostomy/ or email Sylvie Dobrota at sylvied@stanford.edu.

Cindy has a great plan. Her church group has undertaken helping people that need Ostomy supplies. Cindy will pick up excess supplies and distribute them to people in our area that have a critical need. So, saying that, any excess supplies you might have, we now have a way to get them to local people in need.

If you have any suggestions for a speaker at one of our meetings, please let Jennifer or Crystal know and they can be scheduled. Remember, the success of our meetings is the result of all of our efforts, not just one person! Please help! Our next meeting is February 13, 2018 in the Rosalie Rendu Room, starting at 7:00 pm.
The meeting was adjourned at 8:30 pm.

Respectfully submitted,
Dave B.