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With COVID-19 health measures currently in place, in-person meetings are cancelled until further notice. See the current virtual meeting schedule below.

Please check our website again for updates regarding meeting dates, times, and location.

Additionally, you can find a lot of Ostomy information on this website, so take a look around!


Schedule of  2020 Meetings

      • (Virtual) Jun 9, 2020 07:00 PM Pacific Time
        • Zoom Meeting. For more information please contact support@svosg.org or call (408) 365-4452

Have extra supplies to donate?

Kindred Box
6841 Virginia Parkway

Suite 103-183
McKinney, TX 75071

——
2019-Logo-transparent2
Supplies can be shipped to: FOW-USA, 4018 Bishop Lane, Louisville, KY 40218-4539.
FOW-USA is a 501(c)(3) non-profit organization and all donations are considered tax deductible contributions.

Need Supplies?

Hallers Medical Supplies

  • Haller’s Medical Supply (Ostomy) in Fremont
  • 510-797-2221 extension 330 – Kathy Riccardi will respond
  • Open 10-4:00

What Happened at our May 12 Virtual Meeting

The May meeting was called to order at 7:04 pm in our new temporary venue called Zoom, Crystal, 21 people were in attendance for the meeting.  Each person in attendance now can be referred to as an official Zoomie! Crystal is our Captain Zoomie!

Crystal and Jennifer started the round robin introductions of everyone that joined the meeting. Reyhaneh joined us from Oregon where she is in her last year of Pharmacology. We also had Elizabeth from Stanford, Brittany, our Medical Advisor, who told us she is now a Nurse Practitioner, congratulations! We also had a very Special person join us; Dr. Paul. Paul got his Ileostomy in 1961 and was the Web Master for our group for many years. It was great to see him and through his efforts and his wife Ursula, they added a lot of positive energy to the group for many years! We extend a great deal of gratitude to Dr. Paul! Paul moved to Fresno some time ago and he maintained our Web site from Fresno. Paul told me it was time to turn over the reins to a new Web Master.

I want everyone to welcome Derek as our new Web Master. We are the largest support group in the country and it is due in part to the efforts of these two men! We Thank you!

Each member of the group introduced themselves and told what brought them to our group. Colostomy, Ileostomy and Urostomy got us here, and how each of us deals with the process. Julie was on with her mother who is going to have her procedure later this month. As her mother does not speak English, Julie was asking questions then explaining to her mother what to expect. Margo joined us with a fabulous Hawaiian background that got everyone’s attention. Eddie was there, but would not share his stash of Costco popsicles!

Jennifer asked everyone to look for a new place for us to meet. We do not know when we can gather together, and O’Connor may not let us back in, we simply do not know. If you know of a location that we could use, please let Crystal or Jennifer know.

We are looking at buying Liability Insurance for our group as the places we have talked to require it. If you know of someone that deals with this kind of insurance, please let us know.

Virginia informed us that the “Be Strong, Live Long” Health & Wellness Fair scheduled for Friday, May 29 has been postponed.

As soon as we know anything different, it will be passed along.

Several people asked about the Golden Gate chapter, Support Group. They meet the fourth Tuesday of the month at Mills Health Center in San Mateo. 100 S San Mateo Drive, San Mateo, CA. The president is Jessie and can be reached at 510-789-7585, email address is jesdama@goldengatechapterostomy.com. The Golden Gate Support group typically has 6-8 people at a given meeting.

Reyhaneh shared some interesting information. She was having an issue with a blockage. She tried something different. She went to Costco and bought an Inversion Table. From what I gathered, she leans back and ends up partially upside down. She loves it. Food for thought!

Elizabeth shared a very helpful web site for translation.

This is provided as we have a member whose mother is going in for surgery and does not speak English. Using the information for communication boards to help her communicate.

Our next meeting will be June 9 at 7:00 pm. For more information please contact support@svosg.org or call (408) 365-4452.

The meeting adjourned at 8:16 pm.

Respectfully Submitted,

Dave Bunger

Secretary


What Happened at our February 11 Meeting

The February meeting was called to order at 7:00 pm in the de Paul Room by Crystal, 19 people were in attendance for the meeting. 

Establishing something a bit new for our group, Ms. Kathy and Dr. Paul were nominated to become the first two Honorary Members of the Silicon Valley Ostomy Support Group. Kathy has been a long-time member, secretary and owner of the Santa Clara Ostomy and Medical Supply. Dr. Paul, also a long-time member and current Web Master for our group. We gratefully appreciate their efforts in assisting to make our group what it is today.

We also nominated Ms. Brittany, RN, WOCN as the group’s new medical advisor. 

We then welcomed Ms. Tonya, BSN, RN, CWOCN and Ms. Bonnie, RN, Clinical Manager, both from El Camino Hospital Wound Care Center. Tonya brought along a number of pouches, pastes, powders, that she talked about then passed around the room. Tonya and Bonnie both talked about what services the Wound Care Center at El Camino Hospital can provide for ostomates; Services include Pre-Operative care including Stoma Site Marking Education, Post-operative teaching, nutrition counseling, pouching, product fit and ordering, Ostomy complication management and trouble shooting, hernia, support belt assistance and how to irrigate. The Wound Care Center is located at 2660 Grant Road, Suite F, Mountain View. To schedule an appointment, call the Wound Care Center at 650-940-7003.

Tonya demonstrated the proper use of Stoma Powder and Skin Prep. Powder First, gently shake off any excess, then use a spray on Skin Prep. Good to use to protect the skin. She also handed out some Ostomy Nutrition Guides.  

She also talked about various suppliers and explained some of the rules of dealing with Medicare. 

The Silicon Valley Ostomy Support Group wants to thank Tonya and Bonnie for their participation in our meeting. We look forward to future visits. 

One of our members, Virginia L. brought along a new product from Stoma Genie. Stomagienics. Inc. This product was the result of a man who was having issues and so he designed the Stoma Genie. I spoke with Teresa at Stomagienics and she will be sending us a video and products in the future. StomaGenics can be reached at 1-844-696-7866. (See additional info below)

On Friday, May 29, from 10 am to 2pm, the City of Santa Clara will be hosting the fourth annual “Be Strong, Live Long” Health & Wellness Fair. The date was moved to avoid inclement weather and the time has been extended by an hour. Virginia L. will be our point person for this event. She would greatly appreciate your help, even if it is for an hour. The fair will be held in Fremont Park, adjacent to the Senior Center in Santa Clara.

We began collecting dues for 2020. We voted to assess ourselves $20.00/year to pay the few bills that we have. Annette, our Treasurer collects and records this. Cash, Check or Stock certificates will gladly be accepted. The check should be made out to the Silicon Valley Ostomy Support Group. Thank you to those who are helping to keep us going.

I want to Thank Diana for bring cookies. Sure was nice!

Meeting adjourned at 8:43 pm,o                             

Dave Bunger – SVOSG Secretary  


Supplemental to the minutes: 

Hello Dave!

I enjoyed talking to you today and am excited to share information about our products, the StomaGenie® and SecurPress®.

The StomaGenie Capture Cartridge® is a biodegradable cartridge lined with super absorbency designed to capture effluent during a pouch change.  With the cartridge covering the stoma, it can capture any uncontrolled effluent which eliminates the anxiety of recontamination.  This allows ample time to properly clean and prepare the peristomal skin for the next baseplate.  

Additional benefits are:

If a stoma is not round, we can create a custom adapter to fit the stoma while using our capture cartridge

it reduces the risk of skin irritation/and or infection because peristomal skin is properly cared for

reduces the cost of supplies by getting the change right the first time

discreet – can be used anywhere, no clean up required

odor is contained with cartridge in place

there is no mess to clean up (soiled gauze, paper towels, washcloths, etc.), simply cap and throw the StomaGenie® away!  Please visit us at www.stomagienics.com

Below is a link to a video detailing how the cartridge works during a pouch change:

 https://vimeo.com/374762304

Below is a link to a video detailing how to use our product, the SecurPress®, which is designed to help secure the baseplate to the peristomal skin between the flange and stoma:

https://vimeo.com/357818619

The StomaGenie® is Medicare reimbursable under HCPCS code A5081 up to 31 cartridges a month and is covered by most insurance companies.

Our insurance distributor is: Medical Care Products, Jacksonville, FL; patti@ostomymcp.com; 1-800-741-0110

Our retail distributor is: Medical Monks; https://medicalmonks.com/product/stomagenie-disposable-capture-cartridges/

We currently have a special running entitled “5-Change Challenge”, purchase 5 cartridges for $19.95, fill out a survey prior to use, complete an exit survey and receive a box of 10 cartridges free!  If interested, please email theresa.johnson@stomagienics.com.

Please don’t hesitate to contact me should you have additional questions!

Theresa Johnson

Co-Founder

Mobile 225.939.1460

Please visit us at www.stomagienics.com


What happened at our January 14th Meeting

The January meeting was called to order at 7:10 pm in the de Paul Room by Jennifer. 21 people were in attendance for the meeting.

We handed out “Stoma Tips” a publication from England. These were sent to us from MA Healthcare in London England. We want to express our sincere thanks to  Mr. Benjamin Wakefield for sending them to us.

Thank you for requesting a copy of Stoma Tips, the free biannual magazine that provides frank and honest advice on ostomy products to help readers find the stoma routine that works best for them.

You will shortly receive your copy of the current issue and then every issue we subsequently publish. You can read a free digital version of our latest issue here.

We have a dedicated customer service team who can help with any enquiries you have around delivery problems, contact information changes or for whatever reason should you no longer need to receive the magazine. If you can contact them on +44 (0)1722 716997 or by emailing subscriptions@markallengroup.com

Kind regards,

Benjamin Wakefield,
Editor of Stoma Tips Magazine

We welcomed three new members to our group. Tonya, a CWOCN from El Camino Hospital. Tonya offered to speak to our group at our next meeting in February. We gave Tonya several copies of Stoma Tips to take with her to El Camino Hospital. Julie, who came to see what our group is about. Her mother is scheduled to have a colostomy soon and does not speak English. Julie asked a number of questions and we invited her to bring her mother to upcoming meetings. We also welcomed Paul, who recently had a colostomy.  While not a new member, James and his wife Dana drive from Livermore to attend out meeting. They both talked about what they get out of coming. We are glad that they are with us!

Jennifer began our introductions by telling us about her own journey. While no one wants to have an ostomy, not getting one can result in death. We are happy that she chose to have the procedure as well as everyone else at our meeting. As we went around the room, many stories were shared, from the most recent ostomate to Robert, who had his procedure in 1991. Each story is unique, each story is special and each story was shared from the heart.

Eddie came to our meetings before he had his Colostomy, to ask questions and he told us that he spent a lot of time watching U Tube videos to prepare himself. He swears by the “Stealth Belt”.

We are trying to get Collin from Stealth Belt to speak at our March meeting, as soon as we hear anything, we will let you know.

We began collecting dues for 2020. We voted to assess ourselves $20.00/year to pay the few bills that we have. Annette, our Treasurer collects and records this. Cash, Check or Stock certificates will gladly be accepted. If you want, you can mail your check to Annette.

The check should be made out to the Silicon Valley Ostomy Support Group.

If someone has the time to create some delicious treat for our next meeting, it would be greatly appreciated. Either that or if you could stop by a bakery and pick up some goodies, we will pay for them. Makes the meeting more enjoyable. Please let me know if you can help out.

If you have a suggestion for a speaker, please let me know. I will gladly make the request. In the past, we have had Surgeons, Nephropathic Doctors, Physical Therapists, Acupuncturists, Ostomy Supplier Representatives. If you have a suggestion….

At our next meeting, a motion will be brought forward for the following: For our first two Honorary Members:

Ms. Kathy – Former Owner of Santa Clara Ostomy and longtime Member and Secretary of our group.

Dr. Paul – Longtime member of our group and current Webmaster for the group.

Brittany, WOCN, will be nominated to become our new Medical Director.

Our Next Meeting will be February 11 in the de Paul Room starting at 7:00 PM

If anyone has surplus Ostomy Supplies, Friends of Ostomates Worldwide, fowusa.org would be happy to help you. Supplies can be shipped to:

FOW-USA, 4018 Bishop Lane, Louisville, KY 40218-4539. FOW-USA is a 501(c)(3) non-profit organization and all donations are considered tax deductible contributions.

Meeting adjourned at 8:43 pm
Dave Bunger – SVOSG Secretary