Our next meeting is Tuesday April 9th
The meeting will take place at 7:00 PM in the Rosalie Rendu Room, in the cafeteria. Give yourself a bit of extra time as O’Connor is now locking the doors near the cafeteria at 6:00 pm. The front doors of O’Connor are still open past 6:00 pm. Persons who have recently experienced surgery or are about to undergo surgery are encouraged to attend, as well as those who support ostomates.
Schedule of 2019 Meetings
April 9, May 14, June 11, July 9, August 13, September 10, (October 8 – Bag Change Extravaganza) , November 12, (December 10 – Christmas Party + Raffle)
Free Ostomy Clinic launched at SJSU Learn more
Special inserts provided by UOAA – Go to Dec 2018 insert
York Times Article concerning Crohn’s Disease
Five Things I Wish I’d Known Before My Chronic Illness
What Happened at our March 12th Meeting
The March meeting was called by to order at 7:02 pm in the Rosalie Rendu Room by Jennifer, 20 people were in attendance for the meeting.
This evening, we had a special guest speaker, Palak Shah, a Physical Therapist from Luna Physical Therapy at your home. Luna Physical Therapy focuses on Orthopedic/Sports injuries, Joint pain, Senior Care, After Surgery, Back & Neck Pain and Specialty Care. Get Luna can be reached at 1-866-635-6223 or www.getluna.com to arrange an in-home visit.
Palak opened the session by asking for questions. Lifting, Bending, Weight Gain, Hip Mobility, Lower Back Pain, all of this happens to us as we age. What goes on as we breathe. Palak demonstrated breathing techniques that help in our daily lives. She also suggested to stand with the load equally on both feet. Palak closed by saying, “ Improve Life through Physical Therapy!”
The group responded very favorably to her presentation and asked a lot of questions.
A Note for Spare Ostomy Supplies:
Cindy Hays currently has a full garage of spare Ostomy Supplies and at the moment we seem to have more than we have room for. If you have spare supplies and want to help someone in need, mail to the following:
Ostomy 2-1-1, Inc
C/O Olivet Baptist Church
1201 NW 10th Street
Oklahoma City, Oklahoma 73106
We want to Thank Sue Wingerter for her excellent baking skills. We greatly appreciate her efforts to make cookies for us, they were delicious!
If you take a look at our Web Site, www.svosg.org, you will see a lot of information about Ostomies and our upcoming schedule. We try to schedule speakers that can relate to people with Ostomies. We have had surgeon’s, Naturopath’s, Acupuncturists, Representative’s from various suppliers. The reason this is mentioned is to ask for your help in filling our schedule for upcoming meetings. If you know someone that would speak to our group, about anything related to the world of an Ostomate, please let me know about it so I can try to schedule it.
Our next meeting is April 9, 2019 in the Rosalie Rendu Room, starting at 7:00 pm.
The meeting was adjourned at 8:35 pm.
Respectfully submitted, Dave B.
What Happened at our February 12th Meeting
The February 12th meeting was called to order by Crystal at 7:02 pm in Rosalie Rendu Room at O’Connor Hospital Hospital. 19 people were in attendance.
Zonk Thompson from Sanitary Ostomy System came to make a presentation about his patented disposal system. Zonk was in an accident that left him with peritonitis and an emergency colostomy. In the hospital the nurse cleaned his one piece the usual way by using her fingers to push the contents out of the pouch. He couldn’t believe there wasn’t a better way. So he invented a system whereby a roller pushes the contents into a disposal bag which you then throw away. You can purchase a “Traveler” system that includes everything you need, gloves, wipes, roller attached to disposal bag, totally self contained. You can carry it with you wherever you go, fits in your purse or pocket$12.50 for one5 or more $10 each. Great for keeping in the car. There is also a kit with a reusable roller, wipes and 5 collection bags starting at $19.75. Very reasonably prices. It occurs to me that this would be wonderful for someone with arthritis and/or pain in their hands. Find the products online at www.sanitaryostomysystem.com, 805-226-9735. Zonk is offering a buy one and get one free traveler if you agree to participate in a Beta test.
Little tip from Virginia Y. who likes to wash out her pouches. She says to wash your reusable pouch make your own saline water with 4 cups of boiling water and 2 tsp of salt. Cleans your pouch like new.
Stealth belt is offering us $10 off your next purchase. Use the code Glover2K19.
Brittany Hoang, RN, WOCN is working on her Master’s Degree and asked if we would help her out by taking a survey for her research. She is researching the availability of access to out patient ostomy nurses. Very short and painless the survey is at https://www.surveymonkey.com/r/DPCXCDS
The United Ostomy Association of America conference is August 6-10, 2019 in Philadelphia, PA. Members of our group who have gone say these conferences are well worth it. The organization is offering scholarships through the Conference Attendee Reimbursement of Expenses Sponsorship or C.A.R.E.S. program to assist with the travel and lodging expenses. The program is aimed at first time attendees and new ostomates. Call the organization to ask for an application 1-800-826-0826.
Future meeting guests:
- March 12 –Luna Physical Therapy
- April 9-Cassandra Wunschel Convatec Territory Manager
- May 14-open
- June 11-Toni Daniels Coloplast representative
- July 9-open
- August 13-John Roberts Hollister representative
- September 10–open
- October 8- Bag Change Extravaganza! A show and tell experience where volunteers show us how they manage their changes. We all learn so much.
- November 12–open
- December 10-Holiday Party and raffle
Meeting was adjoined at 8:30 PM
Respectfully submitted by Crystal I.
What Happened at our January 8th Meeting
The January 8th Meeting was called to order at 7:00pm in Rosalie Rendu Room at O’Connor Hospital by Crystal. Nineteen people were in attendance including 3 newcomers.
Collin from Stealthbelt.com came to make a presentation about his product which has been highly endorsed by members of our group. He began his presentation by telling us his journey to becoming an ostomate. Collin was a competitive long distance runner in high school and university. In his junior year of college he developed ulcerative colitis and had to take time off training and school to regain his health. Since his whole identity was wrapped up in being an athlete he suffered an emotional crisis besides working to regain his physical health. One of his professors told him, “only challenge produces the opportunity for greatness” which inspired Collin to overcome any obstacles and begin training again. He finished college and began working for Stealthbelt, a product he believes in. We at the meeting can attest that his work and his story are an inspiration to others.
A few things we learnt from Collin at the meeting. We all want to prevent getting a hernia or making our hernias worse. To prevent a hernia, the tighter the belt the better and core strengthening is important. Collin advocates learning the proper mechanics of movement and to find a physical therapist who specializes in functional movement. When first working on getting your strength back after surgery look up youtube videos on postnatal exercises for women who have had C sections.
After Collin’s presentation we asked our new folk if they have any questions we can help them with. Good luck to Michelle who undergoes surgery on Thursday.
Crystal asked for volunteers for panel speakers for an ostomy nurse class at San Jose State University. Eddy, Rich and Virginia volunteered.
March 12 – Luna Physical Therapy http://www.getluna.com
Meeting was adjourned at 8:30pm
Respectfully submitted, Crystal I.
Addendum to minutes
After our meeting we received an email letting us know that long time group member Linda Sloan, who worked to cope with a short gut ileostomy, passed away. We will inform the group of the date of her memorial service when we hear of it. It will be in the spring or later.
What Happened at our December 11th Meeting
The December meeting was called by to order at 7:12 pm in the Rosalie Rendu Room by Crystal, we started a bit late due to organizing efforts for the Christmas Social. 17 people were in attendance for the meeting.
We had a short Round Robin introducing each member of our group. This has become a key part of each meeting as we understand what our members are facing and how they deal with some of the issues involved.
Crystal then began the evenings activities. People bought tickets and placed their tickets into bags in front of the items they were interested in. Crystal then with help began to draw tickets and we presented the winner with the item. A lot of fun was had by all. A fair amount of money was raised that will help with some of the expenses incurred by our group. A Special Thank you goes out to the members who simply made a donation to help out.
Bag it Away.com sent samples of their Ostaway x-Bag, an Ostomy Disposal Bab bags that were handed out, a special Thank you goes out to Eddie for sending us those samples.
Stealth Belt sent us a belt and it was raffled off. Eddy was the lucky winner! Thank you to Stealth Belt.
As 2018 winds down, and we look back on the year, we have had a number of very interesting meetings. With your help, 2019 will be better. Here is what the year will start off with:
Speaking of fun. Several people have asked that we have a “Social Night” at a local adult beverage facility. We took a vote and we will be scheduling a “Ostomy Night Out in the Near Future.” The consensus was a Tuesday evening starting at 5:30PM.
If anyone has a suggestion for a location, please let me know! Crystal wants Santana Row. Looking for suggestions here! A number of people raised their hands wanting this to happen. Can we have a volunteer to chair this event?
If you take a look at our Web Site, www.svosg.org, you will see a lot of information about Ostomies and our upcoming schedule. We try to schedule speakers that can relate to people with Ostomies. We have had surgeon’s, Naturopath’s, Acupuncturists, Representative’s from various suppliers. The reason this is mentioned is to ask for your help in filling our schedule for next year. If you know someone that would speak to our group, about anything related to the world of an Ostomate, please let me know about it so I can try to schedule it.
I am happy to announce that the Free Ostomy Clinic opened the afternoon of October 12th, 2018 at San Jose State University. They provide ostomy care to adults and children who cannot obtain this service elsewhere. Clinic hours ware from 1:30 pm to 7:00 pm on most Fridays, except school holidays and semester breaks. Clients will be seen by appointment only; clients may call the clinic appointment line at (408) 924-3422 to schedule an appointment. If a scheduler is not available to take the call, the client may leave a message and the call will be returned as soon as possible. We will issue parking passes to clients prior to or during the appointment. Please spread the word to those in need.
Our next meeting is January 8, 2019 in the Rosalie Rendu Room, starting at 7:00 pm.
The meeting was adjourned at 8:25 pm.
Respectfully submitted, Dave B.