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Our Next Meeting is Tuesday, July 11, 2017

Our next meeting is July 11, 2017 at 7:00 PM in the Rosalie Rendu Room, in the cafeteria. Give yourself a bit of extra time as O’Connor is now locking the doors near the cafeteria at 6:00 pm. The front doors of O’Connor are still open past 6:00 pm.

Schedule of Future Meetings  – 2017 

July 11, August 8, September 12,
October 10, November 14, and December 12.

Persons who have recently experienced surgery or are about to undergo surgery are encouraged to attend, as well as those who support ostomates.

Map & directions to meeting.

What happened at ourJune 13 Meeting

The June meeting was called by to order at 7:00 in the Rosalie Rendu Room by Jennifer.  23 people were in attendance for the meeting.  

We had two new people join us tonight;

  1. Steve – Colostomy May 2017
  2. Elizabeth – RN – A WOCN nurse who asked for our help.

Introductions were beginning by Jennifer with each person describing a brief history or what they were researching to do in the future. We are going to try to keep the introductions brief to allow for more time for detailed discussions.

Elizabeth asked us to complete a survey for her as she is renewing her certification. She then stayed for the remainder of the meeting.

Virginia, brought with her a PowerPoint Presentation that she has developed with input from our group called “Ostomates’ Hints”. This presentation is designed to help Ostomy patients in their learning curve with this new normal in their lives or Us helping others through you. She presents this to the San Jose State WOCN Nursing program several times each year.

A brief synopsis of the presentation included the following:

  1. Ostomy Stories, 2.  Ileostomate/Colostomate Tips, 3.  Urostomate Tips, 4.  All Ostomates – Hints & Tips, 5.  The Future, 3D Pouch Printout, 6. Resources, 7 Products, 8. It’s a Gift!

Virginia continues to add items to this presentation. Our plan is to put this on the Silicon Valley Ostomy Support Group Site in the near future.

A couple of things worth mentioning. The Silicon Valley Ostomy Support Group does have some expenses that are paid by our dues program. The dues are $20.00/year. This money goes to pay for the insurance we need to have in order to use the facilities at O’Connor and a few other items such as a telephone. If you can help out with this, it would be greatly appreciated. If you cannot make it to the meeting, email me and I will send you Annette’s address. Thank you…Several members helped out tonight, Thank you!

While there was a brief discussion of what a “Barbie Butt” is, no one presented their own definition. So, saying that, we will try again in July!  

There was discussion regarding the upcoming UOAA 6th National Conference, August 22nd to the 26th, 2017 in Irvine, California. Copies of the conference program were handed out. At the conference you will find, Doctors, Nurses, Vendors and a lot of other people that can answer almost any question you might have! John and Linda already made their reservations for the cruise. You will have to ask them about the dinner cruise. If you are interested in learning more about this event, click here. Reservations can be made at that website.

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at http://svosg.org for that information. July 11 is our next meeting! Thanks to Linda for great cookies!

Our NEW Phone number is:  408-768-9162.                  The meeting was adjourned at 8:30 pm.   

What happened at our May 9th Meeting

The May meeting was called by to order at 7:07 in the Medical Conference Room by Crystal. O’Connor Hospital were having BBQ’s for the staff and had the Rosalie Rendu room full of supplies for their event. The catering staff when we asked for help, were outstanding. Larry offered us the use of the Medical Conference room and free drinks. Thank you, Larry. 21 people were in attendance for the meeting.

  1. We had three new people join us tonight;1. Joe and his wife Darcy –
  2. Kita and her two sisters, one of which is a Wound Care/Ostomy Nurse
  3. Joyce

Introductions were beginning by Crystal with each person describing a brief history or what they were researching to do in the future. After receiving emails from our new members, they all appreciated that part of the meeting and felt very welcomed.

After the introductions were completed, an open forum began. People with questions brought up and in almost every case a satisfactory answer followed. The wealth of knowledge in our group continues to amaze me.

Jennifer was at home tonight in the recovery mode. We look forward to seeing her soon.

A couple of things worth mentioning. The Silicon Valley Ostomy Support Group does have some expenses that are paid by our dues program. The dues are $20.00/year. This money goes to pay for the insurance we need to have in order to use the facilities at O’Connor and a few other items such as a telephone. If you can help out with this, it would be greatly appreciated. If you cannot make it to the meeting, email me and I will send you Annette’s address. Thank you…

Our Meeting in June will be special. Virginia will present the Power Point program she has developed and shows to the Nurses at San Jose State Wound Care/Ostomy Program. There is a wealth of knowledge there and Virginia is extremely knowledgeable. Get there early on June 13…….

While there was a brief discussion of what a “Barbie Butt” is, no one presented their own definition. So, saying that, we will try again in June!

There was discussion regarding the upcoming UOAA 6 th National Conference, August 22 to 26, 2017 in Irvine, California. Copies of the conference program were handed out. At the conference you will find, Doctor’s, Nurses, Vendors and a lot of other people that can answer almost any question you might have! John and Linda already made their reservations for the cruise. You will have to ask them. If you are interested in learning more about this event, click here. Reservations can be made at that website.

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at http://svosg.org for that information.

Our NEW Phone number is: 408-768- 9162. The meeting was adjourned at 8:30 pm.

What happened at our April 11th Meeting

The April meeting was called by to order at 7:00 in the Rosalie Rendu Room by Crystal. 15 people were in attendance for the meeting.

Jennifer recently had additional surgery in San Francisco, spent a few days there, then came home. She was home for a few days then made a quick trip to the ER at O’Connor. From there, it was back to San Francisco for a couple more days. She is now at home and on the recovery trail! John spent most of yesterday at the Kaiser Hospital ER. It was not a fun day for John. Please put Jennifer and John in your prayers.

We started the meeting with introductions. We had two new members tonight. Cameron and Paul. Paul is a Urostomate and loves to backpack. If you are interested, please talk to him. Cameron is a new colostomy patient and we were able to give him some suggestions.

Virginia, Annette and Cindy talked about their experience of going to the San Jose State WOCN program. This is an event at the only WOCN nursing program west of the Mississippi. Having ostomates there allows the nurses to ask pertinent questions that they might otherwise not be able to ask.

There was discussion regarding the upcoming UOAA 6th National Conference, August 22nd to the 26th, 2017 in Irvine, California. Copies of the conference program were handed out. Virginia also talked about the value of going to this conference. At the conference you will find, Doctor’s, Nurses, Vendors and a lot of other people that can answer almost any question you might have! If you are interested in learning more about this event, click here. Reservations can be made at that website.

I have included in this month’s minutes an article written “By Korin Miller for Self.” We have permission from Amy Miller, Deputy Editor, Self to include it in our minutes. I think you will find it to be interesting. Click here to read the article.

Several members paid their annual dues. While the group does not have a lot of expenses, the liability insurance, ($500.00/year), the phone and a few other items needs our help. Dues were set at $20.00/year of to cover these items. If you can, please help and pay your dues, thank you…If you are unable to make the meetings, you can email me for an address so they can be mailed in. Thank you…..

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at http://svosg.org for that information. Next meeting is May 9th in the Rosalie Rendu Room. We start at 7:00 pm. At our June meeting,
Virginia will present the Power point presentation she has put together for the program at San Jose State. I know you will find it interesting.

Finally, last night, the term “Barbi-Butt” came up. While some have a good idea, I am looking for the bestdescription for a “Barbi-Butt to include in our list of terms. Derek was the first member that I can recall using the term, so maybe he will have a great description! Please email me your description, be detailed, and we will vote on the winner. The winner will receive either a bottle of wine and a box of chocolate!

Our NEW Phone number is: 408-768- 9162. The meeting was adjourned at 8:27 pm.

What happened at our March 14th Meeting

The March meeting was called by to order at 7:00 in the Rosalie Rendu Room by Dave. 16 people were in attendance for the meeting.

Jennifer joined up this evening and told us what she has been going through. It looks like March 28, she will have surgery. Her Doctor thinks they have a great plan this time and she should be walking in tall cotton soon afterwards. Keep the good thoughts going her way!

We did our usual introductions. Tonight, John related to the group our experience of going to Stanford to become test subjects for a small device that attaches to the ostomy bag that is designed to alert the wearer if the bag is full. Both John and I have had some problems with it, but as I said, this is what the test program is about. The group of researchers are working on a device that attaches to an Ostomy bag to alert the individual that the bag is full. This is a four-week study where you would have to go to Stanford at least twice, then you get to keep the device. This device will communicate with a “Smart Phone” (read Iphone) to provide the alert. More information can be found at aim.stanford.edu/ostomy.

We welcomed Belvia, who is going to have a Colostomy and her daughter Marisa to our group. Jennifer brought up the WOCN Nursing program at San Jose State, slated for later this month. We had volunteers for Colostomy, Ileostomy and we will ask Virginia to volunteer for the Urostomy. Jennifer will confirm the date and contact our volunteers!

There was discussion regarding the upcoming UOAA 6 th National Conference, August 22 nd to the 26 th, 2017 in Irvine, California. Copies of the conference program were handed out. John told us he had already made his reservation for the conference and the cruise he and Linda are going to take as part of it. If you are interested in going, click here. Reservations can be made now.

Several members paid their annual dues. While the group does not have a lot of expenses, the liability insurance, ($500.00/year), the phone and a few other items needs our help. Dues were set at $20.00/year to cover these items. If you can, please help and pay your dues, thank you…If you are unable to make the meetings, you can email me for an address so they can be mailed in. Thank you…..

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at http://svosg.org for that information.

Next meeting is April 11 th in the Rosalie Rendu Room. We start at 7:00 pm. Our NEW Phone number is: 408-768- 9162. The meeting was adjourned at 8:25 pm.

What happened at our February 14th Meeting

Meeting Minutes

The February meeting was called by to order at 7:05 in the Rosalie Rendu Room by Crystal. 14 people were in attendance for the meeting.

Jennifer is having some issues and is not feeling good. Keep the good thoughts for her.

We began the meeting with a short presentation from Dara Rouholiman from Stanford. His group of researchers are working on a device that attaches to an Ostomy bag to alert the individual that the bag is full. This is a four-week study where you would have to go to Stanford at least twice, then you get to keep the device. This device will communicate with a “Smart Phone” to provide the alert. More information can be found at aim.stanford.edu/ostomy.

Introductions were made and tonight we had a new member who is researching what it is to have an ostomy. Brian has bladder cancer and is waiting for the next biopsy to decide what to do. He sounded very positive and we welcomed him to our group.

Burt related his experiences since having Ostomy surgery in October of last year. He appreciated the openness of our meetings and felt he could ask any kind of question without worrying about embarrassing someone.

Thanks to the thoughtfulness of Linda and Annette, we had special snacks to celebrate Valentine’s day. They were great.

There was discussion regarding the upcoming UOAA 6th National Conference, August 22nd to the 26th, 2017 in Irvine, California. Copies of the conference program were handed out. John told us he had already made his reservation for the conference and the cruise he and Linda are going to take as part of it. If you are interested in going, reservations can be made now.  Learn more about event

Several members paid their annual dues. While the group does not have a lot of expenses, the liability insurance, ($500.00/year), the phone and a few other items needs our help. Dues were set at $20.00/year to cover these items. If you can, please help and pay your dues, thank you…

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at http://svosg.org for that information.

Next meeting is March 14th in the Rosalie Rendu Room. We start at 7:00 pm.

Our NEW Phone number is: 408-768-9162. The meeting was adjourned at 8:20 pm.

What happened at our January 10th Meeting

Outstanding handbook produced by Vancouver Ostomy Support group – Download & Print.

Outstanding handbook produced by Vancouver Ostomy Support group

Outstanding handbook produced by Vancouver Ostomy Support group – Download & Print.

The January meeting was called by to order at 7:05 in the Rosalie Rendu Room. Ten people were in attendance for the meeting. Jennifer is having some issues and is not feeling good. Keep the good thoughts for her.

Give yourself a bit of extra time as O’Connor is now locking the doors near the cafeteria at 6:00 pm. The front doors of O’Connor are still open past 6:00 pm. Crystal talked briefly about the 2017 dues raised to $20.00/year. The reason for that is we now must have liability insurance to be able to use a room at O’Connor Hospital. The cost for this insurance is $500.00/year. Annette, our treasurer is keeping track of this for us.

Introductions were made of the group and a brief history of why each of us attend. This evening, we had two new ostomates join us. Cynthia and Frank. We welcome you to the Silicon Valley Ostomy Support Group and look forward to assisting you in any way we can.

Two members of our group celebrate birthdays this month. Happy Birthday to Sharon and John! I would like to extend a Happy Birthday to our members. The only thing I need is your birth date, month and day will do just fine.

Tonight, California is trying to make up for lost rain and I think a lot of people simply did not want to be out in the rain. Hopefully, February will improve a bit.

The UOAA National Conference this year will be in Southern California. August 22 – 26. If you are interested in going, reservations can be made now.  Click Here to learn more.

Please remember you can find the dates of our 2017 meeting schedule on our Web Site. Please look at www.svosg.org for that information. Speaking of our Web Site, I want to thank Paul for his support and talents as our Web Master. We could not do it without your help!  Our NEW Phone number is: 408-768- 9162. The meeting was adjourned at 8:20 pm.