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Our Next Meeting – September 8th

The Silicon Valley Ostomy Support Group meets on the second Tuesday of each month, in the Rosalie Rendu Room in the cafeteria. Persons who have recently experienced surgery or are about to undergo surgery are encouraged to attend, as well as those who support ostomates. The next meeting is slated for September 8, 2015.   Map & directions to meeting.

We will have guest speakers at the following meetings. During these meetings we will leave time for questions for the guest speaker, as well as time for our round-robin at the end of the meeting.

What Hat Happened at our August Meeting

The August meeting was called by to order at 7:00 PM by Crystal. 14 people were in attendance for the meeting. Next Meeting is slated for September 8 October 13 – Bag Change planned!?!

Jim Kisler from B-Lo Solutions was our keynote speaker. His company has developed an Ostomy Pocket which is an attachment that snaps on to an undergarment to make wearing an ostomy pouch more comfortable. There is no sewing as it is designed to snap on. They are available in 3 colors and can be used with any ostomy pouch. The purpose is to help avoid contact with skin and body parts, adds additional support for the ostomy pouch. They can be ordered www. OstomyPockets.com or through Amazon. These pockets are machine washable.

Vivian Wong, RN, Wound Care and Ostomy Nurse from San Jose State Nursing Program joined with us this evening. She answered some questions and then talked about the Sunday Seminar at San Jose State.

On Sunday, October 25, 2015, the Silicon Valley Support Group has been invited to San Jose State, the Wound Care and Ostomy Nursing Program for a seminar. This approximately 2 hour session, ~ 10:00 to 12:30 or so and it allows Registered Nurses who are enrolled in the program to ask people with ostomies questions. We are in need of three volunteers. Several people have volunteered already. The ideal group is that we have one person with each type of ostomy. Please let Jennifer know if you would like to go.

Volunteers so far:

1. Linda S. – I/ 2. John E. – I/ 3. Richard S. – I / 4. Virginia – U/  5. Dave B. – CUOAA-Conf-2015

A reminder was given of the UOAA Conference in St. Louis, October 1-4. This national seminar is very educational and REQUIRES reservations! To learn more about the eveent, or to regiter, click on the image on the right

The October 13, Silicon Valley Ostomy Support Group Meeting is planning another Bag Change extravaganza! Volunteers will be needed to demonstrate the changing of the ostomy appliance. This was a popular item

last year and so new volunteers are needed for the October meeting! Please let Crystal or Jennifer know if

you want to volunteer! This was a great learning experience for all who attended! With adequate support,

this might become the annual October agenda…

Approximately 15 minutes of questions in a round robin manner. We welcomed Michael D. to our group

this evening.

The meeting adjourned at 8:30 PM

What Hat Happened at our July Meeting

The June meeting was called by to order at 7:00 PM by Dave. 22 people were in attendance for the meeting.

Helen Rueda from Shield Health Care came with Laura Cox, also from Shield Health Care. Laura is a Ostomy Life Style Specialist and spoke on issues dealing with life with an Ostomy. She shared her story and then took questions from the group. Helen also took questions regarding Ostomy supplies and some of the issues in dealing with hospitals. After the meeting, both Helen and Laura stayed answering questions on an individual basis. Laura star’s in several YouTube Video’s. You can find a lot of information by watching these videos.

Also available for information is a blog at Inspire.com. Easy to set up an account and password, then type in the area you are interested in; in or case, Ostomy and you will see a lot of good ideas….

Art Lee from Coloplast came and talked briefly about and then handed out brochures and some samples. We also had two WOCN Nurses at our meeting. Merribeth and Carol from O’Connor Wound care came and brought surplus supplies that will be taken to Santa Clara Ostomy for distribution to other parts of the world.

A number of people voiced a concern about how ostomy care is taught in the hospital after surgery. The prime concern was that most people are still medicated and do not recall much of what was taught.

A question and answer period followed.

Thanks to Sharon for taking wonderful notes!The meeting adjourned at 8:30 PM

What Hat Happened at our June Meeting

The June meeting was called by to order at 7:00 PM by Jennifer. 16 people were in attendance for the meeting. Our next Meeting is slated for July 14, 2015.

John Roberts from Hollister came to speak to the group. Hollister is a 95 year old company that started as a printing company. In the 1970’s, Hollister developed an Ostomy pouch. John talked about the history of the Ostomy skin barrier. He talked about new products that Hollister is working on, such as the Cera Plus Skin Barrier. He provided numerous samples to the group and handed out a “Hollister Secure Start Form” for those people who were interested in receiving information from Hollister.

A number of people voiced a concern about how ostomy care is taught in the hospital after surgery. The prime concern was that most people are still medicated and do not recall much of what was taught.

A question and answer period followed.The meeting adjourned at 8:20 PM

What  Happened at our May Meeting

The meeting was called by to order at 7:00 PM by Crystal. 20 people were in attendance.  20 people were in attendance for the meeting. The topic this month was Short Bowel Syndrome. Ms. Joanne Stoecker from Shire made the presentation. She explained what Short Bowel is and what its effects are on the body. She presented a number of slides that provided the details of Short Bowel and what can be done to aid the patient in dealing with this situation. She made the suggestion to use Pre Biotics and Pro Biotics to aid in the digestion process. She also recommended Gator Ade G3 as it has a great combination of sugars and salt to help the digestive system. She made the suggestion to do a search on the internet for an Intestinal Rehabilitation Program in the area.

(A Search on Yahoo came up with several; here is the one from Stanford Hospital!) The Stanford Intestinal Rehabilitation and Transplant Program offers advanced treatment strategies for patients with gastrointestinal dysfunction due to short bowel syndrome (or “short gut”). At Stanford Health Care, we provide personalized medical, nutrition and surgical therapies to improve intestinal function and meet the lifestyle needs of each patient. 300 Pasteur Drive 1st Floor, Suite A160 Stanford, CA 94305 Phone: 650-498-7878

In addition to her presentation, Ms. Stoecker provided refreshments for the group.

Crystal presented a synopsis of information from UOAA:

Caring for your Ostomy – Camping with an Ostomy – Wisdom from a Pharmacist – When to call the Doctor or Ostomy Nurse – Vitamin B-12 Replacement Therapy – Special Clothing for the Ostomate – Tap Water vs. Bottled Water – Depends on the Source – Some ABCs of Urostomy Care –

Additional information can be found through United Ostomy Associations of America, (www.ostomy.org). You can find a Wound Care Continence Nurse at the following web address.

Several members of the SCVOG brought in excess Ostomy supplies. The excess was taken by Crystal to Santa Clara Ostomy & Medical Supply, where Kathy Riccardi sends them to developing countries with a critical need.

What Happened at our April Meeting

The April meeting was called by to order at 7:04 PM by Jennifer.  Twenty people were in attendance for the meeting, including Helen Rueda from Shield Health Care. Linda Eells provided snacks to eat for the meeting. Thank you Linda!

On Sunday, April 19th, Jennifer, Virginia and Dave will go to San Jose State University to interface with a nursing class of students who are studying to become Wound Care and Ostomy Specialists.

On September 1-6, the UOAA will hold its 5th National Conference in St. Louis Missouri. The purpose of this national workshop is to present the latest in Ostomy developments to members of UOAA. Events range from Yoga, day 1, to ask the Doc’s, Day 2, to a wide variety of topics related to Ostomy’s. If this has any interest for you, click here.

Introductions were made around the room. People in attendance introduced themselves, spoke briefly about their history and how they were doing.

In the May meeting, a “Short Bowel Expert” will join us to talk about issues related to short bowel and related issues.

Helen Rueda, CWCMS, from Shield Health Care spoke about a provider of Ostomy Products and how they operate. Helen explained how as the primary supplier to Kaiser Hospital, the formulary is currently limited at 35 products. If there is an issue with this, then a patient can go beyond the “formulary” and request an additional product! Contact her at hrueda@shieldhealthcare.com. Also look at www.shieldhealthcare.com for what they offer.

In June, the Silicon Ostomy Group will have a representative from Hollister to speak.

Butt Paste – Boudreaux’s Maximum Strength Butt Paste diaper rash ointment 4 oz was mentioned to help reduce irritation around a stoma.

Virginia – Developed a Sponge Brush to clean a one use bag from the bottom. She took a Sponge brush, and reduced it in size and it works….

Information – Look at https://www.ostomysecrets.com. This is a place to find Ostomy underwear. 1-877-613-6246. Underwear for men and women.

The meeting adjourned at 8:30 PM

What Happened at our March Meeting

The March meeting was called by to order at 7:03PM by Co-President Jennifer. Twenty people were in attendance. The next meeting is slated for April 14, 2015.

Board members were introduced to all in attendance. A motion was then presented and approved for David Bunger to become the new SVLG Secretary. Sharon, SVOSG Treasurer, reminded everyone that the current annual dues are $10.00. Co-President Jennifer also noted that SVOSG is a non-profit organization and if anyone would like to make a donation, it would be much appreciated.

Following announcements, introductions were made around the room and the new people to the group were welcomed. The evening’s discussion centered on experiences that people with Ostomies had and what a new person could expect. Some of the new people were nervous, but as the evening went on, they heard from a number of long-time ostomates who reassured them that they could enjoy life- even with an ostomy.

One of the SVOSG members who is a urostoate, handed out several documents, including a questionnaire asking for people’s tips and tricks for living with an ostomy. That information will be put together in a brochure. She also handed out general information from the UOAA, as well as showed products that she felt would be helpful to those in the group.

In April, three members of the Silicon Valley Ostomy Group will be guest speakers for the WOCN class at San Jose State University. Everyone at the meeting was happy to hear that the WOCN program at SJSU is doing well.

UOAA’s 10th Anniversary will be celebrated at the UOAA National Conference, September 1-6, 2015, in St. Louis, Missouri. The location of the conference hotel is the Hyatt Regency St. Louis at the Arch. Click here for more information regarding the UOAA’s 2015 National Conference

What Happened at our February Meeting

The February meeting was called by to order at 7:00 PM by Crystal. 21 people were in attendance for the meeting.

Introductions were made around the room and the new people to the group were welcomed. The evenings discussion centered on experiences that people with Ostomies had had and what a new person could expect. Some of the new people were nervous, but as the evening went on, they heard from a number of people in the group that an Ostomy is something to deal with and you continue to enjoy life.

Suggestions were made, when you try a new product; try it on the opposite side from your stoma. That way, if your body does not like it, your stoma is still ok! Also, for a person that is going to have an Ostomy, try wearing a pouch for a couple of days to get used to it.

San Jose State Nursing Program now has an Ostomy program. Several members of the support group were invited in January to talk to nurses in training about life with an ostomy. As a result of that, the professor teaching the class informed Crystal that they would like to do this every semester.

A suggestion was made to look at the Vitality Medical site for products;

Also suggested was Osto-EZ-Vent. Call them at 1-888-562-8802. They do send out free samples!

The meeting adjourned at 8:10 PM

What Happened at our January Meeting

The meeting was called to order at 7:00 PM by Co-President Crystal. In attendance were 24 people, including Ostomy veterans and several who are scheduled for Ostomy surgery.

Crystal asked for suggestions for speakers for future meetings and several different suggestions were made.

  1. Surgeon
  2. Supplier Representatives
  3. Mrs. Sally Talley – Ostomy Nurse

The meeting went around the room, with each person introducing themselves and sharing the type of Ostomy they had. The new people also introduced themselves and were looking for suggestions, advice and wanted to know what to expect. One topic that came up was the timing of the suggestion of surgery from a doctor. The discussion did cover some of the various medicines and their effects.

The meeting was adjourned at 8:30 PM.

To Learn more about previous year’s meetings click on menu item: Meeting Archives.